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As it is well know, multiple sclerosis has a number of symptoms, some more bizarre than others. It’s needless to say, that while some symptoms are well documented and everybody knows about them, there are a number of adjacent symptoms that are seen as awkward and unusual, and don’t seem to be related to multiple sclerosis. Eye twitching is one of them.

Of course, everybody experiences eye twitching from time to time, and this is attributed to lack of calcium. But, how can one be sure that their eye twitching and multiple sclerosis are related, and that this doesn’t mean that they need more calcium? Well, there’s no way to know that for sure without any tests.

The question is, how is eye twitching caused by MS? As it is already well know, multiple sclerosis is an inflammatory autoimmune disease that is constantly progressing due to the demyelination of the fatty myelin sheaths around the spinal cord and brain, and pretty much everywhere where myelin is present. This demyelination directly affects nerve cells’ ability to communicate with each other – this happens both in the brain and spinal cord. What exactly happens? Nerve cells use electrical signals to communicate with each other. The signals are sent through axons, and the axons are wrapped in an insulating substance – the myelin.  The immune system of a person with MS attacks and damages the myelin – needless to say, this doesn’t happen in the body of a person who doesn’t have MS. As myelin is lost, the axons are unable to properly conduct the electrical signals sent by the nerves through various parts of the body.

Due to the fact that there are lots of myelinated retinal nerve fibers in the eyes, the autoimmune system of a person who has MS attacks that myelin, which can lead to a number of symptoms like blurred or double vision, loss of color, and of course eye twitching.

The question on everyone’s mind is “can this be prevented?” Unfortunately, as already said, MS is a progressive disease, so this means that the chances of stopping this are very, very slim (at least for the moment). But it has been proven that people, who take their medication religiously and keep their level of fitness up, slow down the effects that MS has on their bodies.

Of course, it is to be expected to have days when eye twitching is constant and days when it is not present at all. This happens due to the nature of the disease itself as there are periods or relapse and periods when everything is fine.  Unfortunately, some days will be better, some worse, but one  needs to understand that this is just the MS and one of its symptoms – there’s no reason for fear or despair!

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-3 # Taylor 2011-11-27 18:57
My mother has MS and recently my eye has been twitching continously she told me that her eye twitched for 6 months before she was diagnosed with MS. I know that we still don't know the cause of MS but I've also heard that Doctors don't think its Hereditary. Honestly I am extremely worried and don't know what to do my eye has only been twitching for almost 5 days how early can MS be detected?
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+1 # Michelle 2012-11-26 15:50
Hey Taylor. i'm curious to see what your outcome was. I am experiencing the same thing and my mom has MS as well. TY
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+3 # Joy 2011-12-08 11:17
My right eye and the right side of my face has been twitching for a month and a half. After having an MRI done and finding spots on my brain, it is likely that I have MS. I ask just learning about the disease,, but although it can be hereditary, its not always passed on like that. Nobody else in my family has MS. you'll need to wait and see if your twitching goes away - and if not they'll do an MRI and spinal tap and blog tests to rule out anything else. lots of people's eyes twitch when they are tired or stressed so it could just be that hopefully. Good luck
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-1 # Natalee 2012-01-24 02:55
I had an MRI last year which showed 2 spots on the brain that were said to be small. There was about 2-3 months off an on where I felt completely off. I had problems with my vision, being dizzy and tingly on the left hand side of my body. This was totally frustrating because of how it would come and go. Now I am having problems with my left eye twitching and patches of my face twitching. I am really having problems with fatigue and am starting to feel off again. I haven't been diagnosed with MS. I am really frustrated and would love to know what is wrong with me. ANY SUGGESTIONS OUT THERE?
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-1 # AshJay 2012-01-31 22:16
Recommend get an mri... better be safe than sorry
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+1 # Claire Faulkes 2012-02-06 08:08
I would ask for a lumbar puncture to rule out MS
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0 # Julia 2013-02-28 15:28
[quote name="Doctors don't think its Hereditary. Honestly I am extremely worried how early can MS be detected?
Doctors DO think there is a hereditary component, although it has not been pin-pointed. My father had MS, I have MS and my son was diagnosed last year at age 17 with MS. According to the Mayo Clinic, you have a 1 in 3 chance of developing MS if a parent or sibling has MS, other sources list different figures but all do recognize the vastly increased risk to first degree relitives of people with MS.

Getting a diagnosis will be done by a nuerologist after an MRI showing active lesions or scaring. Make an appointment with your primary physcian, tell the Dr. any possible symptoms you have. Request a referal to a nuerologist. Try to see the same one that treats your mother as he is familiar with some of your history. For my family onset symptoms were all the same for 3 generations.
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0 # Julia 2013-02-28 15:39
Spinal taps are diagnostic only and do not rule out MS.

1) Zero to one Oligoclonal Band is considered normal.

2) An elevated IgG index is considered an abnormal CSF result - independent of the O-Band number.

2) O-Bands appear with increasing frequency with increasing length of disease. They are not at the 95% to 100% early in the disease when usually the diagnosis is being made. So using the O-Band number to definitely rule out MS early in the course (first several years) is a faulty interpretation of the literature. It is supportive only not a definitive test.
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0 # norm 2012-07-11 18:05
your symptoms are the exact same as mine and I also had an mri and the same 2 swelled spots. May be early symptoms of ms is what the dodctors said. my eye now twitches as well(left only). Please keep me posted of your ongoing symptoms
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+1 # norm 2012-08-26 20:21
I know how you feel, I have the exact same symptoms and an MRI which showed 2 small brain swells, and months later my eye twitched for a month straight non stop. My neurologist is booking me for a second MRI to see how much is changed within the year. He said he may be able to diagnose me after that. He has high distinction in the medical profession and he is almost positive that it is ms. Don't let them slowly wait for your symptoms to disappear, push for a diagnosis
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+1 # sarah old ms post 2012-11-13 08:16
hi natalie can you tell me about your vision problems, i am going threw a mystery myself!
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0 # gypsyflyer 2013-04-04 13:39
Quoting Natalee:
I had an MRI last year which showed 2 spots on the brain that were said to be small. There was about 2-3 months off an on where I felt completely off. I had problems with my vision, being dizzy and tingly on the left hand side of my body. This was totally frustrating because of how it would come and go. Now I am having problems with my left eye twitching and patches of my face twitching. I am really having problems with fatigue and am starting to feel off again. I haven't been diagnosed with MS. I am really frustrated and would love to know what is wrong with me. ANY SUGGESTIONS OUT THERE?
I have the same thing although now my left foot is numb on and off, both eyes twitch to the side real fast (I can feel it but to quick for anyone to see I think)...was diagnosed with "epilepsy" more than 30 years ago, a lot of ppl are misdiagnosed with that one SYMPTOM. I have bladder leak too at odd times which is highly irritating esp when at work.
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0 # Amanda 2012-05-12 14:03
a spinal tap doesn't always prove MS and hurts like hell and can do damage is the doctor doesn't do it right, i say do the mri first, save yourself the pain and hassle.
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+2 # Stacey 2012-09-26 07:17
I had a lumbar puncture and I barely felt it! If people keep trying to scare everyone about how awful the procedure is, then those who need it most won't do it because they are too frightened! I am a nurse, so I fully understand how scary it is for people, but as long as the procedure is done by a good doctor, it feels like nothing more than a light pinch.
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0 # Adrian 2014-07-19 07:04
After about five years of being told I had ME, I finally persuaded a neurologist to give me a lumbar puncture and this diagnosed my MS. The spots on my MRI and brain stem had been dismissed as 'normal' prior to the LP being done. It was completely painless and as Stacey points out below, it can be a necessary test and people shouldn't be put off it by the numerous scare stories that abound out there. I was worried as I'd heard it was SO painful. People I've spoken to since have said 'Oh that's really painful isn't it?' NO it wasn't really painful. I was relaxed, I had a good doctor and the test took very little time at all. I hope that helps somebody.
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+1 # kam 2012-05-20 17:11
I was just diagnosed. I began with extreme fatigue, like, I couldnt even talk, literally, and it would hit me out of nowhere. and MRA found lesions, but the docs just kept telling me to go see my psychiatrist. I listened. My psych suggested i get an EEG for possible seizure activity. That doc literally told me that there is nothing wrong that some more psych medication cant fix. that appointment ended badly, lol. Finally, I got in with a neuro that I had seen before for similar but much worse symptoms about 10 years ago. LP done, kinda hurt, positive diagnosis. Im glad to finally have a diagnosis.
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+3 # Lisa 2012-06-13 22:25
@Kam. glad you finally got a dx. It sucks when doctors ignore us and call us crazy. I've been there many times. I was here reading up as I have been having symptoms of AS myself. My eye twitched for almost two months then stopped. Now it's coming back. I've got other symptoms too as well as other autoimmune diseases. I've been told to see a Nuerologist. I was waiting to meet my deductible as initially my GP ordered a brain scan and it was $$$. Then my Rhuematologist said to hold off on it as I might need other testing from the Nuero. Now I'm having trouble picking a doctor. Perhaps I'm afraid? Anyhow, I wish more doctors cared about us enough to know we know our bodies. Better than they. We may not know what is wrong but we know something is wrong. Worse still is having chronic pain of AS and being called a drug seeker. I know there are addicts out there. But there are also patients with Chronic Pain. Hipocratic Oath?
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+1 # Trish 2012-08-24 21:22
I have left eye twitching, sometimes tingling on different parts of my body, I had two very bad episodes of vertigo, the last one four months ago, I felt very, very out of it. My ears are ringing as well. No balance problems, but I am starting to wonder what is going on with me. I just so happen to work for a group of Neurologists, but haven't mentioned this to anyone except that I told my husband last night.
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0 # Evie 2012-09-18 11:20
I have the same exact symptoms as Trish. I have told the doctors about my vertigo, tingling, eye twitching, etc with no results. It's very frustrating. Last MRI was one year ago and was normal. I was in the hospital for severe vertigo at the time.
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+1 # Brenna 2012-09-27 14:01
I recently had an "episode" where I thought I might have had a small stroke. Sharp pain in my face, that whole side of my face went numb. Pain onlylasted a few seconds, but some of the numbness was still there the next day. Anyway, they pretty much ruled out stroke at the ER and referred me to a neuroliogist . He examined me and found out that I have numbness in my upper and lower extremities, especially left side. ( I have tried my best to ignore my syptoms
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0 # Rhonda 2013-02-24 20:30
Sounds like it could be TIAs. My mom has them and they cannot be detected by MRI and brain scans. A TIA is a mini stroke that gives very similar symptoms.
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0 # Brenna 2012-09-27 14:08
Ugh, didn't get to finish my post. Anyway, Dr tested my reflexes and they were mostly nonexistent. He is sending me for MRI. I am really nervous about possibly having MS , but at this.point I am more nervous about NOT getting a diagnosis. The fatigue, muscle weakness and other symptoms, eye twitching ,etc. are really adding up and it would at least be good to.know what is wrong with me.
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+1 # Latoya 2012-10-15 01:47
My left eye has been twitching 4 almost 2yrs off/on; sometimes none stop & other times it can a few days or so without twitching. Its very annoying 2 have 2 deal with this twiching/blinking just about on a daily basics. My eye doctor told me that it was going 2 stop & thats been like I said earlier about I in the messager; almost 2yrs ago. Does any1 have any suggestions(exc ept 4 getting botox-besides I couldnt afford it if I wanted 2) on what or how I can get my left eyes 2 stop twicthing/blinking & I can go back 2 being normal?
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0 # Stree 2013-02-21 12:42
Same problem I have my right side eye flicking during one month continuously but I dont know whether its ms or other things !
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0 # gazza 2013-03-03 18:40
Why is there no need to fear or despair?
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0 # Jules 2013-09-23 14:50
There's no need to fear or despair because symptoms of ms are not fatal. They are symptoms, and although they are aggravating and some can be quite debilitating, they will not kill you. Don't despair when you have eye twitching. It's it's caused by your ms, it isn't something to panic over. It's good advice.
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0 # Pamela 2013-12-04 15:28
Jules, I don't mean to sound harsh but, have you been dx with MS? Having lived with it for over 20 yrs I can tell you MS is a disease to fear and causes many to dispair over the changes in their life. MS is different for everyone. If you suffer from MS fatigue you want to curl up in a ball and disappear. You live a maybe life. You never know if you will feel like doing anything. Spasms so bad they leave bruises.My bladder doesn't work and I can cath myself up to 4x a day. Restorative sleep is a thing of the past. Numbness,weakne ss, limbs giving out on me in the middle of a parking lot are constant worries. I could go on...now my Left eye is twitching which is why I came upon this thread. So while MS by itself may not be fatal I can assure you it causes plenty of fear and dispair.
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0 # Amy 2013-06-18 22:59
I have been having the same symptoms as mentioned in prior posts- left lower lid has twitched (more like, pulsating) continuously for a month, mild blurry vision hear and there, pins and needle type tingling in hands and various other places on the body, and a general feeling of being "off". I went to a regular doctor who quickly referred me to a neurologist. He mentioned then possibility of MS. I haven't seen the neuro yet but will soon. It's frustrating and scary at the same time. It's easy to take our health for granted, but with these issues, I have a whole new appreciation for when I felt well. I'm praying for an explanation that is treatable!
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0 # Christina 2013-08-02 20:58
I have had eye twitching in my left eye for almost 9 years. It's what lead to my ms diagnosis 8 years ago. I DO get botox. But since it is in my upper eyelid, it doesn't do much anymore. I was taking Copaxone for the last couple of years. I just recently switched to Tecfidera. It seems the spasms have gotten worse. REALLY tired of the twitch. Driving me CRAZY!
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0 # Tamara Daniels 2013-09-25 15:50
Have you tried REBIFF and what was the results? My sister tried Copaxon but switched to REBIFF maybe 3 yrs ago. It was better for her than Copaxon. But I'm wondering what Tecfidera is like and how long has it been around. Do you know?
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0 # gypsyflyer 2013-09-26 09:54
No...I refuse to take their sorcery "meds". I take Cannabis oil and juice fresh vegees and fruits and getting so much better
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0 # Amy Edwards 2013-08-05 12:02
I've had an on and off eye twitch for the last 4 months! I had a MRI and it showed white spots I'm now having a lumber punch done :/ is this likely to be ms? X
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0 # Amy 2013-08-05 12:08
Hey Amy,
Was eye twitch your main symptom that prompted your MRI?
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0 # Amy Edwards 2013-08-05 12:17
I was getting head aches and face dropping ! Now my vision is slightly blurred! I've seen lots of doctors at the John Radcliffe
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0 # Amy 2013-08-05 12:27
Ok- I was just curious cause I've had a persistent eye twitch for over 2 months, pins/needles sensations, electric feelings and dizziness. I also had some blurring in the same eye that has been twitching. I'm waiting on MRI results (I go in tomorrow). It's frustrating to have these weird symptoms and no clear answer at the moment.

How many spots did they see in your MRI?
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0 # Amy Edwards 2013-08-05 12:30
They weren't very clear I the amount of spots! I've had an evoked potentially test also with is another way of seeing if I have it! So just in the waiting game now which I hate
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0 # Amy 2013-08-05 12:35
Wow- well I hope for the best for you! This waiting game is the pits for sure! If you don't mind me asking, how old are you? (I'm 37)
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0 # Amy Edwards 2013-08-05 12:38
Don't mind at all I'm 22
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0 # Tamara Daniels 2013-09-25 15:54
My sister has MS. It took YEARS to be finally diagnosed (in San Diego). She was in her 40's when they diagnosed it. You're in your 20's. Did you find out whether it's MS you have? I pray it won't be a hinderance for you.
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-1 # Amy 2013-08-05 12:59
It's not as common in your age range, so hopefully you don't have it!! ;)
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0 # gypsyflyer 2013-09-26 09:57
Yes it IS very common in 40s and 50s to FINALLY know why you have been sick on n off for all those years!
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0 # Lydia 2013-11-05 23:02
My front left lobe is covered in scares and my eye balls hurt so bad that I want to rip them out of my head. I also have burning feelings in both feet. From my hips down tingle. My muscles in my back hurts. I only feel good for maybe a week every month. I live on over the counter pain meds to be able to work. My head hurts every day. I know how everyone feels. I wish everyone the best of luck. Lydia from Michigan.
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